Virtual Rare Disease Study
Remote (Central Time Zone Preferred) | Part-Time (1099)
Role Snapshot
- ~24 hours per week
- Preferred days: Monday, Tuesday, Friday
- Contract through end of 2026 (potential to extend)
- Remote with occasional travel (~3x/year)
Overview
Edwards-Hunt Group is seeking a Clinical Research Coordinator Consultant to support a virtual data collection study focused on a rare genomic disorder across adult and pediatric populations.
This is a patient-facing, remote coordinator role for someone who is highly organized, comfortable engaging directly with patients and families, and able to independently manage study activities with professionalism and attention to detail.
Key Responsibilities
- Conduct patient and family outreach, recruitment, and screening calls
- Lead and document informed consent and eConsent discussions
- Coordinate remote study visits and follow-up activities
- Build rapport with participants and caregivers
- Maintain accurate source documentation
- Perform EDC and CTMS data entry
- Track participant progress and outstanding actions
- Escalate protocol, safety, or participant concerns as needed
- Communicate regularly with EHG clinical operations leadership
- Participate in study meetings via Microsoft Teams
Required Qualifications
- 2+ years of clinical research coordinator experience
- Experience supporting virtual or remote clinical studies
- Strong patient-facing communication skills
- Experience with informed consent processes
- Experience with EDC and CTMS systems
- Strong attention to detail
- Ability to work independently
- Proficiency with Microsoft Office and Teams
- Availability for calls through 7:00 PM CT when needed
- GCP, HIPAA, and Human Subjects Protection training required
Preferred Qualifications
- Healthcare or clinical background
- Experience with rare disease or genomics
- Experience with adult and pediatric populations
Ideal Candidate
- Comfortable speaking with patients and caregivers
- Organized and dependable
- Strong follow-through
- Professional and confidential
Compensation
Compensation is commensurate with experience.
To apply, please email your resume to
admin@edwardshunt.com