At EHG, we understand the vital role that disease-specific non-profit organizations play in transforming patient advocacy into scientific progress. With nearly two decades of experience guiding rare disease foundations and advocacy-driven research efforts, we provide the operational, clinical, and strategic support needed to bring your mission to life.
We partner with non-profits to build infrastructure that fuels real-world impact—supporting everything from clinical research program design to biospecimen collection, technology integration, and strategic planning.
What We Offer Non-Profit Clients
Strategic Planning for Clinical Research Success
We work closely with your leadership team to develop actionable roadmaps tailored to your community’s needs—whether launching your first natural history study, building a network of clinical trial sites, or preparing for clinical trial readiness. Our customized plans support both scientific impact and donor confidence.
Program Development & Implementation
From concept to execution, we help you create innovative, fundable research programs—biorepositories, registries, treatment trial execution, and more. We conduct gap analyses and operational assessments, ensuring every initiative aligns with your mission and maximizes limited internal resources.
Technology & Talent Management
With the right platforms and people, your organization can do more with less. We identify, evaluate, and help implement clinical research technology solutions (e.g., EDC, eRegulatory, CTMS, LIMS) while also supporting vendor selection and staff development to scale your capabilities with confidence.
Driving Investment Toward Communities That Need It Most
We believe non-profit organizations are powerful engines of innovation—especially when supported by the right operational infrastructure. Today, EHG also partners with hedge funds and private equity firms to guide responsible investment into non-profit-aligned clinical programs. Our goal: help direct capital to patient communities with urgent unmet needs, backed by data, feasibility, and compassion.
Let’s Advance Your Mission—Together
Whether you're planning your first clinical trial or refining an existing program, we’re ready to help. Contact us to discuss how we can support your research, your community, and your vision for impact.
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